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Had a follow-up with the ID doc today. As many suggested, two weeks isn’t enough for the meds and he said the same thing. Because I’m such a good patient, he’s giving me another four weeks of Doxycycline – woohoo! The great news is that he tested for all other tick borne diseases and I’m clear. Didn’t get me this time you little blood sucking bastards.
I told him about the gastro problems I had and how everything I read said to take the meds with food. He said to take it an hour before meals, but not to take it with meals or it minimizes the effects. He also said it’s not uncommon for the gastro problems to happen even if you’ve tolerated the meds for a week without problems, which I did. The good news is I get to stop the pills if my stomach gets pissed, the bad news is I get the IV. Come on iron stomach, don’t fail me now!
The doc is great and the people in the office are too. That’s a good thing when you’re feeling like crap.However, it’s a little unnerving when you hear them talking about the CDC calling about something. Got to wonder who was in the exam room before you – uggh! Guess you have to expect that when you’re at an infectious disease doc. Maybe they should have a room for little annoying infectious diseases like LD and one for bad ass ones.
Got a response on my blog from someone who was very kind to give me some info (thank you Mary Ann!) Following are some of the symptoms she’s passed on. I’ve got quite a few, but thankfully, not the real bad ones (knocking on a lot of wood right now). If you think you have LD and have a combination of any of these symptoms, go get tested!
- Unexplained fevers, sweats, chills, or flushing
- Unexplained weight change–loss or gain
- Fatigue, tiredness, poor stamina
- Unexplained hair loss
- Swollen glands
- Sore throat
- Testicular pain/pelvic pain
- Unexplained menstrual irregularity
- Unexplained milk production: breast pain
- Irritable bladder or bladder dysfunction
- Sexual dysfunction or loss of libido
- Upset stomach
- Change in bowel function-constipation, diarrhea
- Chest pain or rib soreness
- Shortness of breath, cough
- Heart palpitations, pulse skips, heart block
- Any history of a heart murmur or valve prolapse?
- Joint pain or swelling
- Stiffness of the joints, neck, or back
- Muscle pain or cramps
- Twitching of the face or other muscles
- Neck creeks and cracks, neck stiffness, neck pain
- Tingling, numbness, burning or stabbing sensations, shooting pains
- Facial paralysis (Bell’s Palsy)
- Eyes/Vision: double, blurry, increased floaters, light sensitivity
- Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
- lncreased motion sickness, vertigo, poor balance
- Lightheadedness, wooziness
- Confusion, difficulty in thinking
- Difficulty with concentration, reading
- Forgetfulness, poor short term memory
- Disorientation: getting lost, going to wrong places
- Difficulty with speech or writing
- Mood swings, irritability, depression
- Disturbed sleep-too much, too little, early awakening
I found out the hard way that the instructions provided with Doxycycline to take it on an empty stomach isn’t the best way to take it. It didn’t bother me at first, but the last couple days, I was starting to get really sick. I was taking it in the morning before breakfast and at night before bed.
I did some research and nearly everything I read advised to take it with food AND not to take it before lying down (i.e. right before bed). Apparently, it does a job on your esophogas if you don’t allow gravity to take it down.
So, ask your doc or pharmacist what they recommend or you might be in for some intestinal misery.
Took my final dose last night. Not sure it did anything, but have an appt with the ID next week to see what’s next.